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When Your Brain Goes “Hoo-Hoo”
Lately, Boy1 has been raising a finger to the side of his head, twirling it around, and saying, “hoo-hoo” — that familiar gesture for “crazy.” It makes me giggle every time, but it also tugs at my heart a little. I can’t help but wonder if he’s more aware than we realize when his brain Read more
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Teaching the Way He Learns
It’s happening — we’ve officially made the call to homeschool Boy1. It’s a mix of emotions right now: grief over saying goodbye to the wonderful elementary school experiences we’ve had, excitement about the new opportunities ahead, and a fair amount of anxiety about figuring out this new path. Boy1 is thrilled. He’s eager to learn Read more
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When the School You Love Isn’t the Right Fit
When we bought our home, one of my biggest requirements was that we stay in the area of our current elementary school. That choice also kept us zoned for the nearby middle and high schools, both with solid reputations. Our family has truly been fortunate to be part of such a strong school district. I’ve Read more
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Balancing the Needs of All Our Children
Something we don’t always talk about—whether we’re living as special needs parents ourselves or supporting friends who are—is that many of us are also raising kids with typical needs. Our identity isn’t only “special needs parent”; it’s one of many hats we wear. And with that comes the responsibility of meeting the needs of all Read more
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Big Heart, Rare Disorder: How Our Boy Helps Advance Research
Boy1 has a rare genetic disorder called SETBP1. As of late 2025, there are only about 250 known cases worldwide (you can read more here: SETBP1.org). It’s not a well-known condition, but fortunately there’s a growing body of research being done. As a bit of a science and data nerd, I love this! I sign Read more
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The Med Check Shuffle
To the moms who forget to schedule their kids’ med check appointments—I see you. And I’m guessing this view is one you’ve seen before, too. Boy1 has been taking methylphenidate for over a year now, and it has done absolute wonders for him. He went from impulsive, aggressive behaviors to keeping his hands to himself. Read more
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