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Big Heart, Rare Disorder: How Our Boy Helps Advance Research
Boy1 has a rare genetic disorder called SETBP1. As of late 2025, there are only about 250 known cases worldwide (you can read more here: SETBP1.org). It’s not a well-known condition, but fortunately there’s a growing body of research being done. As a bit of a science and data nerd, I love this! I sign… Read more
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The Med Check Shuffle
To the moms who forget to schedule their kids’ med check appointments—I see you. And I’m guessing this view is one you’ve seen before, too. Boy1 has been taking methylphenidate for over a year now, and it has done absolute wonders for him. He went from impulsive, aggressive behaviors to keeping his hands to himself.… Read more
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Understanding Apraxia of Speech: Our Journey
If you’ve been following our journey here at momma mommy bwuh, you know that we’re all about sharing the real stuff—joys, challenges, chaos, and love. Today, I want to talk about something that’s become a big part of our daily life: apraxia of speech. Boy1 was recently diagnosed. What is Apraxia of Speech? Childhood Apraxia… Read more
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This Is Why I Speak Up for My Son
Story time. Near the end of the last school year, I volunteered at an event at my boys’ school. I picked a time when I knew I’d see both of them participate. The way their faces light up when they spot me at school — that pure joy — it’s exactly how my heart feels… Read more
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Traveling with my Bwuhs
Summer Flies, and So Do We Every summer, time seems to slip through my fingers. Between running a summer camp for kids with special needs and keeping up with the whirlwind pace of daily life, the weeks just fly by. And now, somehow, we’re just a week and a half away from the boys heading… Read more
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A New Family Venture: Making Silicone Bead Keychains
As a family, we’re always on the lookout for fun and meaningful activities that bring us together while teaching our boys important life lessons. Recently, we’ve embarked on a new project that combines creativity, entrepreneurship, and giving back to the community: making silicone bead keychains! This venture came about after a memorable experience when our… Read more
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