Category: Uncategorized
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Big Heart, Rare Disorder: How Our Boy Helps Advance Research
Boy1 has a rare genetic disorder called SETBP1. As of late 2025, there are only about 250 known cases worldwide (you can read more here: SETBP1.org). It’s not a well-known condition, but fortunately there’s a growing body of research being done. As a bit of a science and data nerd,…
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The Med Check Shuffle
To the moms who forget to schedule their kids’ med check appointments—I see you. And I’m guessing this view is one you’ve seen before, too. Boy1 has been taking methylphenidate for over a year now, and it has done absolute wonders for him. He went from impulsive, aggressive behaviors to…
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Understanding Apraxia of Speech: Our Journey
If you’ve been following our journey here at momma mommy bwuh, you know that we’re all about sharing the real stuff—joys, challenges, chaos, and love. Today, I want to talk about something that’s become a big part of our daily life: apraxia of speech. Boy1 was recently diagnosed. What is…
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This Is Why I Speak Up for My Son
Story time. Near the end of the last school year, I volunteered at an event at my boys’ school. I picked a time when I knew I’d see both of them participate. The way their faces light up when they spot me at school — that pure joy — it’s…
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Traveling with my Bwuhs
Summer Flies, and So Do We Every summer, time seems to slip through my fingers. Between running a summer camp for kids with special needs and keeping up with the whirlwind pace of daily life, the weeks just fly by. And now, somehow, we’re just a week and a half…
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A New Family Venture: Making Silicone Bead Keychains
As a family, we’re always on the lookout for fun and meaningful activities that bring us together while teaching our boys important life lessons. Recently, we’ve embarked on a new project that combines creativity, entrepreneurship, and giving back to the community: making silicone bead keychains! This venture came about after…
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A New Camera, A New Beginning: Starting My Photography Journey This Year
This past Christmas, I received a gift that has already begun to change my outlook on the world around me: a brand-new camera. It’s not just any camera—it’s a tool that I plan to use as part of a personal journey into the world of hobby photography. What started as…
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Another Magical Disney Adventure: A Spring Getaway at Animal Kingdom Lodge
This month, we’re returning to our favorite Disney resort—Animal Kingdom Lodge—and we couldn’t be more excited. The resort’s beautiful African-inspired architecture, incredible animal views, and peaceful atmosphere always make it feel like a home away from home. We’re especially looking forward to our stay because we’ll be meeting up with…
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How Being Intentional with My Time Has Helped Me Find Peace
In a world that constantly encourages us to be busy, it’s easy to get caught up in the rush of daily life. Work, social obligations, and the pressure to keep up with trends and material possessions can overwhelm us, leaving little room for the things that truly matter. For me,…
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Raising “Outside Boys” in a Digital Age
As a parent, one of the most important things I want for my boys is that they grow up strong, healthy, and connected to the world around them. In a time when screens and devices are often the default for entertainment, I’ve made a conscious decision to raise my children…
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