Tag: special needs parenting
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When the School You Love Isn’t the Right Fit
When we bought our home, one of my biggest requirements was that we stay in the area of our current elementary school. That choice also kept us zoned for the nearby middle and high schools, both with solid reputations. Our family has truly been fortunate to be part of such…
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Balancing the Needs of All Our Children
Something we don’t always talk about—whether we’re living as special needs parents ourselves or supporting friends who are—is that many of us are also raising kids with typical needs. Our identity isn’t only “special needs parent”; it’s one of many hats we wear. And with that comes the responsibility of…
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Big Heart, Rare Disorder: How Our Boy Helps Advance Research
Boy1 has a rare genetic disorder called SETBP1. As of late 2025, there are only about 250 known cases worldwide (you can read more here: SETBP1.org). It’s not a well-known condition, but fortunately there’s a growing body of research being done. As a bit of a science and data nerd,…
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The Med Check Shuffle
To the moms who forget to schedule their kids’ med check appointments—I see you. And I’m guessing this view is one you’ve seen before, too. Boy1 has been taking methylphenidate for over a year now, and it has done absolute wonders for him. He went from impulsive, aggressive behaviors to…
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Understanding Apraxia of Speech: Our Journey
If you’ve been following our journey here at momma mommy bwuh, you know that we’re all about sharing the real stuff—joys, challenges, chaos, and love. Today, I want to talk about something that’s become a big part of our daily life: apraxia of speech. Boy1 was recently diagnosed. What is…
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This Is Why I Speak Up for My Son
Story time. Near the end of the last school year, I volunteered at an event at my boys’ school. I picked a time when I knew I’d see both of them participate. The way their faces light up when they spot me at school — that pure joy — it’s…
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Another Magical Disney Adventure: A Spring Getaway at Animal Kingdom Lodge
This month, we’re returning to our favorite Disney resort—Animal Kingdom Lodge—and we couldn’t be more excited. The resort’s beautiful African-inspired architecture, incredible animal views, and peaceful atmosphere always make it feel like a home away from home. We’re especially looking forward to our stay because we’ll be meeting up with…
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Dining with Kids: Señor Tequila (Summerville, SC)
We absolutely love Mexican cuisine and usually stick to our favorite spot, but this time we decided to mix things up and try Señor Tequila since we were in a different part of town. We started with chips and salsa, which we devoured since we were starving from a late…
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Understanding Disney’s Disability Access Service (DAS Pass): A Guide for Families with Children with Disabilities
Planning a trip to Disney World can be an exciting yet overwhelming experience, especially for families with children who have disabilities. Disney’s Disability Access Service (DAS Pass) is designed to make the magical experience of the parks more accessible and enjoyable for everyone, particularly for those who may struggle with…
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Dining with Kids: Cracker Barrel (Summerville, SC)
When it comes to dining out with kids, finding a restaurant that caters to both their tastes and your sanity can be a challenge. Luckily, Cracker Barrel has become our go-to spot for family meals, and here’s why it works so well for us. The restaurant is also very lively…
