Tag: special needs parenting
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Genetic Testing: SETBP1-Related Neurodevelopmental Disorder
We recently received the results of Boy1’s genetic testing, and—drumroll, please—we’ve pinpointed a diagnosis: SETBP1-Related Neurodevelopmental Disorder. While I’m still wrapping my head around all the details of this condition, I’m committed to learning more each day. Exploring SETBP1 on the National Institute of Mental Health (NIMH) website was quite…
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Dining with Kids: Breeze’s (Orange Lake Resort, Kissimmee, FL)
We enjoyed a delightful lunch at Breeze’s, the poolside restaurant at Orange Lake Resort. Although we had dressed up for a special occasion, the weather was a bit too warm for anything other than poolside attire, so we opted to eat inside for a more comfortable experience. The restaurant’s relaxed…
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Fingerprints
I recently came across a quote that really resonated with me: “God gave you a fingerprint that no one else has, so that you can leave an imprint that no one else can.” Although I couldn’t pinpoint its original source—seemingly it’s quoted by many without a clear attribution—the message struck…
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Autism Testing
After Boy1’s psychoeducational testing, we were advised to pursue autism testing. The wait time for the Medical University of South Carolina was around six months, but given that Boy1 has already been waiting for eight years, I wasn’t willing to have him wait any longer. So, I reached out to…
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Dining with Kids: Boma (Animal Kingdom Lodge)
I’ve touched on Boma in my Magical Mini-Vacation post from our October trip, but I’m excited to dive deeper into our recent experiences there, especially since we enjoyed dinner at this incredible restaurant twice during our June visit. Boma is known for its ever-changing menu, but you can always count…
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Animal Kingdom – June 2024
Our third family adventure to Disney’s Animal Kingdom was truly magical! As a family of four, we knew we had to keep our list of must-dos manageable. After all, it was Florida in June, and we knew our stamina for a full day at a theme park would be tested.…
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Dining with Kids: The Mara (Animal Kingdom Lodge)
For our first dinner at Disney’s Animal Kingdom Lodge, we decided to keep things casual and headed to The Mara, the quick-service restaurant by the pool. We wanted a relaxed meal without the fuss of a reservation and something on the lighter side. What I absolutely loved about The Mara…
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Psychoeducational Testing
In May, Boy1 underwent psychoeducational testing at the Medical University of South Carolina. We recently received the results, which included not only the assessment findings but also a referral for autism testing and a consult for suspected attention-deficit/hyperactivity disorder (ADHD). At the time of the initial referral, I hadn’t realized…
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New Name, Same Blog
I started this blog to document my journey as a new(ish) parent to two lively little boys, sharing both the highs and lows of parenthood. While I still plan to cover those experiences, I’m shifting the focus to our life as a new(ish) special needs family, Disney lovers, and dining…
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Teaching Kids Consent
Boy1 has a habit of over-touching. It’s not out of malice—though he can become aggressive when frustrated—but rather from his reliance on physical touch as a means of communication. He’s grown so accustomed to reaching out to others that it’s become a bit too second nature. To address this, we’ve…
